Never a Dull Moment...

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Waiting game....

Well Taylor seems to be getting worse in the not wanting to sleep, not wanting to eat, always walking around crying & moaning and seems to be in constant pain department. If I had just one wish it would be that she could talk and tell us when things are bothering her. I feel so bad for her, but after many days of this I'm starting to get a bit frustrated too. I guess that's what happens when you work on little sleep and are constantly on the go.

Now we're just waiting to hear back from her primary care doctor about getting her an appointment so that we can get her the refferal to see the Pediatric Neurologist (at Walter Reed) that can order the MRI that she was scheduled to get last week at Hopkins, but was cancelled due to the stupidity of the doctor only ordering valium instead of full sedation.

The doctor from John Hopkins finally called us back yesterday and said that with everything that's been going on he's going to put in for her to have another EEG this week sometime and that hopefully that will tell us if anything is causing all this stuff Taylor's been going through.

On a different note, Aidan went for his 15 month well baby appointment and it seems that my little guy has slipped below the 10th% again for his weight and now we're required to bring him in every 2 months for a weight check until his weight goes back above the 25th% again. His weight at his 1 year check-up was 18lbs 8oz and almost 3 months later he was only 19lbs 13oz. His height remained at 28 1/4 inches, the same as it did at 1 year appointment. So now we have to "fatten" him up according to the doc. He has to have a bottle of Pediasure at bedtime, he's limited to 24oz. of whole milk per day, they want us to add sour cream, butter or mayo to food so that he gets some extra calories. Wouldn't we all be so lucky to be told to add those things to our diets, instead we tend to buy them all in the fat-free forms.

Well off to do my daily chores of washing clothes, tidying up the house and keeping the kids from killing themselves. Thank heavens school is ONLY 5 days away :-)

8:57 am - 08/24/2005

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