Never a Dull Moment... ----------------------------------------------------------------------------------------- Where to begin??? Auditory neuropathy = NO hearing aides It seems Mr. Aidan can hear, but that the brain isn't understanding what it's hearing, great huh? They'll know more once they do the ABR on the 13th. The Audiologist is going to talk with the head of surgery for the ENT department and see what he thinks. Their wondering if maybe cochlear (sp?) implants would work. Just another thing for my little guy to go through. Aidan also had his 5th EEG yesterday and for the first time he got a little attitude while getting his leads put on. It seems he didn't like the gritty glue they used and didn't like the guy pressing them on his head. Normally Aidan lays there barely moving, but I think since becoming seizure free he could feel what it was like and decided that he didn't like it. What was even funnier was the guy trying to explain to him that he needed to stop and Aidan NOT hearing him or understanding him. With everything that was going on all I could do was laugh. I know him not hearing and everything isn't funny, but you know sometimes when things are so serious you get the feeling that you just need to laugh, that was me and I couldn't stop. Everything went really well with the Peds. Neuro and Dietician and they don't want to see him back until May - wahoo!!! I'm just hoping that come the end of the month that his Neuro is still working there. He's at the 30yr mark and everyone MUST retire, but they can still bring you back on if they want. Makes no sense to me and the rule was probably made up by a male, but if it will bring Dr. M back it works for me. We got the referral in the mail for Aidan to have his ankle braces made, of course it came AFTER we already had a pair made (on the side thanks to Mr. Hamilton) so we're going to hang onto the refferal and see what the ones look like when they come and if there no good then get the other pair made. The refferal is good until May. That pretty much sums up how my day was spent at Walter Reed. We (as in Aidan and myself) were there from 9:15 to 3:30pm yesterday. We don't have to go back until the 13th and then over to Children's Hospital in DC on the 30th to see the BioChemical Genetist. Luckily my Mom will be coming with me for that appt or I'd probably go crazy. The appt is the same day Steve's command is having there downsizing ceremony and he MUST be there or the whole thing could fall apart. Sounds like some bull$hit to me, but then again this is the same command that calls him whenever he's on leave to ask how to do something or where something is. It would be shocking if the people that made twice as much money as him and were HIS boss would know how to do 1/2 the work. Ok, enough bitching from me. Later... 12:07 pm - 03/02/2006 ----------------------------------------------------------------------------------------- |
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